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Tag Archives: executive function
Spina Bifida FAQ’s: Everything You Ever Wanted To Know About SB (updated 10/23/14)
October is Spina Bifida Awareness Month. For those that don’t know, Spina Bifida is the #1 permanently disabling birth defect in the United States. More people are affected by it than muscular dystrophy, multiple sclerosis, and cystic fibrosis *combined*. I was … Continue reading
Posted in Disability Advocacy
Tagged Arnold Chiari Malformation, Chiari II, chronic illness, disability advocacy, disabled, executive function, fetal surgery, hydrocephalus, inspiration porn, latex allergy, learning disability, myelomeningocele, neural tube defect, nld, nld's, nonverbal learning disabilities, nvld, shunt, special needs, Spina Bifida, Spina Bifida Occulta, stella young, syrinx, tethered cord, The Hand of Hope, ventriculoperitoneal
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Interdependent but Autonomous (how to raise your kids, hee hee O:)
So here we go…. Bleeding Ink is gonna tell you how to raise your kids. Hee Hee. Just kidding. 🙂 Well sorta. I’m just going to impart some knowledge on what I know about growing up as a child with … Continue reading
Posted in Disability Advocacy, My Life (or "More About Me Than You Ever Wanted to Know")
Tagged advocacy, autonomy, disability, disability advocacy, disabled, executive function, independence, interdependence, learning disability, myelomeningocele, nld, nld's, nonverbal learning disabilities, nvld, special needs, Spina Bifida
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Disability Etiquette
This comes from the United Spinal Association and emphasizes the importance of etiquette (disability specific). 1. Ask before you help. :Offer assistance if you notice a need but ask first if your help is necessary. Offer common courtesies, such as … Continue reading
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