Tag Archives: disabled

Spina Bifida FAQ’s: Everything You Ever Wanted To Know About SB (updated 10/23/14)

October is Spina Bifida Awareness Month. For those that don’t know, Spina Bifida is the #1 permanently disabling birth defect in the United States. More people are affected by it than muscular dystrophy, multiple sclerosis, and cystic fibrosis *combined*. I was … Continue reading

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An Open Letter to My Mom (Mother’s Day – updated 2015) and “A Child’s Angel”

Recently I was able to get all my medical records. 90% of them anyway, from the two main hospitals at which I was seen. No, a truck didn’t show up with pallets and pallets full of records, dumping them on … Continue reading

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9/11…….10 years later…………

The morning of September 10, I woke up from a pretty restless night. Slept like crap. Tossed and turned and spent all day pretty tired. I just couldn’t sleep. Promised myself I’d go to bed early that night. That didn’t … Continue reading

Posted in Disability Advocacy, My Life (or "More About Me Than You Ever Wanted to Know") | Tagged , , , , , , | 2 Comments