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Tag Archives: disabled
Spina Bifida FAQ’s: Everything You Ever Wanted To Know About SB (updated 10/23/14)
October is Spina Bifida Awareness Month. For those that don’t know, Spina Bifida is the #1 permanently disabling birth defect in the United States. More people are affected by it than muscular dystrophy, multiple sclerosis, and cystic fibrosis *combined*. I was … Continue reading
Posted in Disability Advocacy
Tagged Arnold Chiari Malformation, Chiari II, chronic illness, disability advocacy, disabled, executive function, fetal surgery, hydrocephalus, inspiration porn, latex allergy, learning disability, myelomeningocele, neural tube defect, nld, nld's, nonverbal learning disabilities, nvld, shunt, special needs, Spina Bifida, Spina Bifida Occulta, stella young, syrinx, tethered cord, The Hand of Hope, ventriculoperitoneal
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An Open Letter to My Mom (Mother’s Day – updated 2015) and “A Child’s Angel”
Recently I was able to get all my medical records. 90% of them anyway, from the two main hospitals at which I was seen. No, a truck didn’t show up with pallets and pallets full of records, dumping them on … Continue reading
9/11…….10 years later…………
*(reason for original opening paragraph to this blog) **(original opening paragraph to this blog.) The morning of September 10, I woke up from a pretty restless night. Slept like crap. Tossed and turned and spent all day pretty tired. I … Continue reading
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