Category Archives: Disability Advocacy

Stories, parables, posts about disability rights and disability advocacy, some written by other people, some written by me. As such, this category has some of the same entries as “My Life (or More Than You Ever Wanted to Know About Me)”. However that category covers a wider array of topics, as the title suggests, and are all exclusively my own thoughts.

My Story

Backstory to what you’re about to read: Regular readers of this blog know I was born with Spina Bifida. I wrote this after I came back from my first Spina Bifida conference in 2003. Before that, I had never even … Continue reading

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Spina Bifida FAQ’s: Everything You Ever Wanted To Know About SB (updated 10/23/14)

October is Spina Bifida Awareness Month. For those that don’t know, Spina Bifida is the #1 permanently disabling birth defect in the United States. More people are affected by it than muscular dystrophy, multiple sclerosis, and cystic fibrosis *combined*. I was … Continue reading

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An Open Letter to My Mom (Mother’s Day – updated 2015) and “A Child’s Angel”

Recently I was able to get all my medical records. 90% of them anyway, from the two main hospitals at which I was seen. No, a truck didn’t show up with pallets and pallets full of records, dumping them on … Continue reading

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