Category Archives: My Life (or “More About Me Than You Ever Wanted to Know”)

Personal stories about me, Bleeding Ink. All the trials and tribulations of my life until now. Sort of a combination of confessionals and therapy. Good luck with that. ;) Disability Advocacy is extremely important to me, so I posted some of my original writings in the “Disability Advocacy” category as well, alongside things I didn’t write. But in here, all entries are exclusively written by me. :)

Spina Bifida Awareness Month Continues. And So Do I…..

When I was growing up, I would receive our local SBA newsletter and I would read about how this 12 year old or that 9 year old with SB died suddenly. That sticks with you. I never thought I’d live … Continue reading

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My Story

Backstory to what you’re about to read: Regular readers of this blog know I was born with Spina Bifida. I wrote this after I came back from my first Spina Bifida conference in 2003. Before that, I had never even … Continue reading

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My Friend Tom

Tom was the first adult who had Spina Bifida (like me) that I had ever met. It took 27 years and a trip to the national conference for me to meet the person who was at that time the president … Continue reading

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