Author Archives: My Bleeding Ink

Spina Bifida Awareness Month Continues. And So Do I…..

Posted on October 22, 2019

When I was growing up, I would receive our local SBA newsletter and I would read about how this 12 year old or that 9 year old with SB died suddenly. That sticks with you. I never thought I’d live … Continue reading →

Posted in My Life (or "More About Me Than You Ever Wanted to Know") | Leave a comment

My Story

Posted on September 1, 2019

Backstory to what you’re about to read: Regular readers of this blog know I was born with Spina Bifida. I wrote this after I came back from my first Spina Bifida conference in 2003. Before that, I had never even … Continue reading →

Posted in Disability Advocacy, My Life (or "More About Me Than You Ever Wanted to Know") | Leave a comment

My Friend Tom

Posted on April 1, 2019

Tom was the first adult who had Spina Bifida (like me) that I had ever met. It took 27 years and a trip to the national conference for me to meet the person who was at that time the president … Continue reading →

Posted in My Life (or "More About Me Than You Ever Wanted to Know") | 13 Comments