Author Archives: My Bleeding Ink

Soundtrack of my Life

Someone please read this to me in case I ever get Alzheimer’s, so I remember who the hell I am, a la “The Notebook” 😉 Also, here’s a tip. There are a lot…..a lot, of links in this entry, mostly … Continue reading

Posted in My Life (or "More About Me Than You Ever Wanted to Know") | Tagged , , , , , , , | 7 Comments

Spina Bifida FAQ’s: Everything You Ever Wanted To Know About SB (updated 10/23/14)

October is Spina Bifida Awareness Month. For those that don’t know, Spina Bifida is the #1 permanently disabling birth defect in the United States. More people are affected by it than muscular dystrophy, multiple sclerosis, and cystic fibrosis *combined*. I was … Continue reading

Posted in Disability Advocacy | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , | 48 Comments

An Open Letter to My Mom (Mother’s Day – updated 2015) and “A Child’s Angel”

Recently I was able to get all my medical records. 90% of them anyway, from the two main hospitals at which I was seen. No, a truck didn’t show up with pallets and pallets full of records, dumping them on … Continue reading

Posted in Disability Advocacy | Tagged , , , , , , , , , , , | 4 Comments