Category Archives: My Life (or “More About Me Than You Ever Wanted to Know”)

Personal stories about me, Bleeding Ink. All the trials and tribulations of my life until now. Sort of a combination of confessionals and therapy. Good luck with that. ;) Disability Advocacy is extremely important to me, so I posted some of my original writings in the “Disability Advocacy” category as well, alongside things I didn’t write. But in here, all entries are exclusively written by me. :)

This is 48

Posted on May 18, 2024 by My Bleeding Ink

So this is 48. And with Spina Bifida, feels more like 60+(Yes “Spina Bifida years” is a thing. I can tell you all about it in a future blog post.)But yeah, 48. Exactly twice as long as I thought I … Continue reading →

Posted in Disability Advocacy, Mental Health Advocacy, My Life (or "More About Me Than You Ever Wanted to Know") | Tagged | 2 Comments

The Other Side of the Bed

Posted on July 4, 2023 by My Bleeding Ink

Being born with Spina Bifida, Chiari II, hydrocephalus, and having all the secondary and tertiary effects from that, hospitals have become second nature in my 47 years of life. Hospitals. Surgeries. ERs. Second nature. Being part of the first generation … Continue reading →

Posted in Kischa's Journey, My Life (or "More About Me Than You Ever Wanted to Know") | 4 Comments

Spina Bifida Awareness Month Continues. And So Do I…..

Posted on October 22, 2019 by My Bleeding Ink

When I was growing up, I would receive our local SBA newsletter and I would read about how this 12 year old or that 9 year old with SB died suddenly. That sticks with you. I never thought I’d live … Continue reading →

Posted in Disability Advocacy, My Life (or "More About Me Than You Ever Wanted to Know") | Leave a comment