Author Archives: My Bleeding Ink

The Sights and Sounds of Surgery

Posted on July 7, 2024 by My Bleeding Ink

Hey! People with Spina Bifida, or anybody that’s had more than 2-3 surgeries… ……no matter how many you’ve had or what they were for, do you also start to freak out about 48 hours before surgery, or is it just … Continue reading →

Posted in Disability Advocacy, My Life (or "More About Me Than You Ever Wanted to Know") | 1 Comment

This is 48

Posted on May 18, 2024 by My Bleeding Ink

So this is 48. And with Spina Bifida, feels more like 60+(Yes “Spina Bifida years” is a thing. I can tell you all about it in a future blog post.)But yeah, 48. Exactly twice as long as I thought I … Continue reading →

Posted in Disability Advocacy, Mental Health Advocacy, My Life (or "More About Me Than You Ever Wanted to Know") | Tagged | 2 Comments

The Other Side of the Bed

Posted on July 4, 2023 by My Bleeding Ink

Being born with Spina Bifida, Chiari II, hydrocephalus, and having all the secondary and tertiary effects from that, hospitals have become second nature in my 47 years of life. Hospitals. Surgeries. ERs. Second nature. Being part of the first generation … Continue reading →

Posted in Kischa's Journey, My Life (or "More About Me Than You Ever Wanted to Know") | 4 Comments