Category Archives: My Life (or “More About Me Than You Ever Wanted to Know”)

Personal stories about me, Bleeding Ink. All the trials and tribulations of my life until now. Sort of a combination of confessionals and therapy. Good luck with that. ;) Disability Advocacy is extremely important to me, so I posted some of my original writings in the “Disability Advocacy” category as well, alongside things I didn’t write. But in here, all entries are exclusively written by me. :)

The Other Side of the Bed

Being born with Spina Bifida, Chiari II, hydrocephalus, and having all the secondary and tertiary effects from that, hospitals have become second nature in my 47 years of life. Hospitals. Surgeries. ERs. Second nature. Being part of the first generation … Continue reading

Posted in Kischa's Journey, My Life (or "More About Me Than You Ever Wanted to Know") | 4 Comments

Spina Bifida Awareness Month Continues. And So Do I…..

When I was growing up, I would receive our local SBA newsletter and I would read about how this 12 year old or that 9 year old with SB died suddenly. That sticks with you. I never thought I’d live … Continue reading

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My Story

Backstory to what you’re about to read: Regular readers of this blog know I was born with Spina Bifida. I wrote this after I came back from my first Spina Bifida conference in 2003. Before that, I had never even … Continue reading

Posted in Disability Advocacy, Mental Health Advocacy, My Life (or "More About Me Than You Ever Wanted to Know") | Leave a comment