Category Archives: Disability Advocacy

Stories, parables, posts about disability rights and disability advocacy, some written by other people, some written by me. As such, this category has some of the same entries as “My Life (or More Than You Ever Wanted to Know About Me)”. However that category covers a wider array of topics, as the title suggests, and are all exclusively my own thoughts.

The Sights and Sounds of Surgery

Posted on July 7, 2024 by My Bleeding Ink

Hey! People with Spina Bifida, or anybody that’s had more than 2-3 surgeries… ……no matter how many you’ve had or what they were for, do you also start to freak out about 48 hours before surgery, or is it just … Continue reading →

Posted in Disability Advocacy, My Life (or "More About Me Than You Ever Wanted to Know") | 1 Comment

This is 48

Posted on May 18, 2024 by My Bleeding Ink

So this is 48. And with Spina Bifida, feels more like 60+(Yes “Spina Bifida years” is a thing. I can tell you all about it in a future blog post.)But yeah, 48. Exactly twice as long as I thought I … Continue reading →

Posted in Disability Advocacy, Mental Health Advocacy, My Life (or "More About Me Than You Ever Wanted to Know") | Tagged | 2 Comments

Spina Bifida Awareness Month Continues. And So Do I…..

Posted on October 22, 2019 by My Bleeding Ink

When I was growing up, I would receive our local SBA newsletter and I would read about how this 12 year old or that 9 year old with SB died suddenly. That sticks with you. I never thought I’d live … Continue reading →

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